[conspire] Henrietta Lacks
Rick Moen
rick at linuxmafia.com
Wed Aug 5 01:44:07 PDT 2020
Quoting Ruben Safir (ruben at mrbrklyn.com):
> I agree. But I think that in this specfic case, under these
> circumstances that her cells were taken, as I understand it, without her
> permision, and because of the great financial benifits to the healthcare
> companies, that it would be correct for the industry to reach above and
> beyond the law, and just do the right thing.
>
> What the right thing is, is a question.
I'll concur with that.
I merely would add that taking such samples without patient permission
was at the time unexceptional, and not seen as wrongful.
Retroactively making these gestures to be respectful seems like a fine
thing. Where I start to have doubts is the subtle implication of it
being an entitlement. That strikes me as not something to accept
without rather a lot more thought.
In particular, the notion that your family could claim income rights
to exploit the disease cells that killed you makes me a little queasy,
and I'm not sure I like that tradition.
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